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This need to talk among patients has given rise to patient groups as well as ‘advisory’ groups. Online patient groups are well-meaning but lack the necessary training to really make a difference. Other groups headed by so-called independent experts claim to be independent while having a hidden financial agenda or surgeon preferential scheme.
These groups fail to provide the sense of well-being through professional emotional support that their membership craves. In some cases, these groups only add to the suffering of their individual members.
Patients reach out to one another in an effort to reduce anxiety created by a lack of hard facts and regulation. Professional patient support groups need transparent approval if the emotional welfare of patients is to be taken seriously.
It is not by accident that counselling is considered a ‘talking cure’.